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Part Seven

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This is a ghost site. We need a new Webmaster. Please don't send me email... write whatever you want in the guestbook. And get in touch with each other.

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(BB#200) Need someone to talk with

I just got home from the hospital were I was diagnosed as having cardiomyopathy. I don't need to tell you that I am very scared. Is there someplace I can go and chat with people that have this same condition that can tell me what is instore for me down the road that I must now take

Thank you for your help in this matter

Paul Chatelain
Waterspt6@aol.com
Received: July 22, 2001

(BB#199) Terrified!

Hello, I have just been diagnosed w/ cardiomyopathy and I am scared for my life. I was 6 months pregnant when I was diagnosed w/ preclampsia and it became so severe that I had to deliver at 34 weeks. Well alot of complications came out of this, I developed fluid in my lungs, liver and kidney failure, high blood pressure, and of coarse cardiomyopathy. I do not know much about this disorder. I hope you can share some information w/ me about how severe it is.

thank you,

Michelle Montes
MichelleSPI@aol.com
Received: June 29, 2001

(BB#198) peripartum cardiomyopathy

Hello my name is Shirley Lopez. I have a question. Is there relapses with this.

I gave birth 16 yrs ago. I live a healthy normal life thank god. My boyfriend would like children but Im horryfied at the thought of a relapse and not being so lucky second time around. Im under a lot of stress at this time because of this. Can you shed some light.

Shirley
Cubby423@aol.com
Received: May 21, 2001

(BB#197) Hi.

Hi from Jackie (me) and wife, Fran. This site is an uplift for me. I have been confused, angry at no information from drs, and down right scared due to not having any coherent answers about my DCM, CHF, and how thay and Type I diabetis interact. Hopefully we will find that information from those on this site.

What is happening with the site? Has anyone taken over? I would like to help if I can.

Sincerely,

Jackie Prewitt
PrewittJ@mail.direcpc.com
Received: April 21, 2001

(BB#196) Translation help?

Friends, I was asked to translate some medical text to English, but i`m not so good in English and especially in translation of medical texts. So, i`m asking you to help me. Please, review, correct this text or give me links to the places where i can solve my problem. I want this text to be read well in English. I know it is not yet. Thank you in advance.

Here is the text:

Increasing spreading of cardiac myopathy (CM) determines attention of researchers to the questions of etiology and pathogenesis of this disease. The common particularity of CM is an infraction of compensatory ability of myocardium and development of blood circulation insufficiency (BCI), that differs by refractoriness to heart glycosides. In order to reveal possible reasons of CM children BCI development, out- (in blood serum) and inner- (in erythrocytes) cellular content of ionized calcium (Ca**) and activity of creatine phosphokinase (CPK) in blood serum were studied. 26 children with hypertrophic (HCM) and dilated (DCM) forms of CM and also with indications of BCI of different grades of appearance from 0-1st stage to 2 B-3 stage were observed.

In comparison with healthy children CPK activity, the one reducing was found on observed children. The ferment oppression is represented mostly at children with ventricular extrasystoles against the background of DCM and at patients with obstructive form of HCM. Pointed changes in myocardium energy supply infringement at children with CM accompanied by increasing of out- and inner- cellular Ca** concentration. The reason of considerable increasing of innercellular Ca** content can be increase of cardiac myocythes sensitivity to adrenergical stimuli, to local rise of cateholamines level in hypoxaemia conditions. It is not excluded that decrease of CPK-reaction leads to braking of ADP phosphorility and decrease of that ATP fraction, which is used for work of calcium pump of sarcoplasmatic reticulum, i.e. for Ca** removal from myofibrils, and diastolic relaxation development. The result of that process is infringement of shortening and BCI development.

Zahar
new_night@aport.ru
Received: March 4, 2001

(BB#195) Any cure for Coxsackie B?

I was told I have DCM 2 years ago. My EF was only 15 % and I was put on a heart transplant list. I'm only 52 years old and have a 6 year old son. I was taken off the heart transplant list after the drugs they gave me helped the CHF. No one knows how long the drugs will work and they are not cures. I read where the Coxsackie B virus can cause DCM and wonder if you're heard of any kind of treatment to rid the body of this virus?
Devin Small
DevinSmall@aol.com
Received: Nov. 21, 2000

(BB#194) I need to know: Can it really just strike any one of us at any time?

I know it's late... but I really do need to talk to someone about the illness cardiomyopathy. I lost my boyfriend two weeks ago to the illness. I say boyfriend it makes us sound like kids... he was 45..... but still so young with so much to look forward to.

Cause of death dilated cardiomyopathy. He had never been fitter. He returned home from work. We ate supper together. Laughed and chatted. We went to bed and five hours later he had fallen into the deepest sleep from which he never woke up. i cannot find any solace in the fact that I am told that he did not die in pain. I just wonder how we never knew anything. How can someone just die and there are no warning signs. I was never even given a chance to try and help him in any way.

We were due to get married on January the 13th 2001. He was a singer and had so much to look forward. His life was on a complete high and it just ended suddenly.

He was ill with a virual heart infection 2 1/2 years ago. He has been on medication since but it was never diagnosed as cardiomyopathy. He seemed to make a recovery and the doctors were so sure of his recovery that they saw him annually. They say it is not connected. Can it really just strike any one of us at any time?

I really just need to talk to someone about this. It know it won't bring him back but I just need to know.

Regards

Sally

FLOBADOB@aol.com
Received: Nov. 14, 2000

(BB#193) What are the odds?

Is transplant the only cure for this sickness? Three to five years is that without a transplant and what are the odds of a 37 year old man with no other health problems on getting a new heart?

I am frightened of the outcome,

Thank you,

Myrtis Elkins

MJ42WE@webtv.net
Received: Oct. 14, 2000